To be opened by Federal Assistant Minister for Health, the Hon Dr David Gillespie MP, the 13th MND Australia Research Conference will be held on Friday the 10th of November at the University of Sydney.

This year we will be launching the $25 Million: 25 Milestones report to acknowledge the progress of Australian MND research supported by the community. In addition, there will be a forum to discuss the future of MND research as well as presentations on the latest MNDRIA-funded research.

Please click here to read the conference program

MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state.  The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.

Please click here to read the full letter

 

 

 

Mindfulness Programs Australasia are offering a range of new mindfulness programs throughout Tasmania until June 2018.  The courses are accessible even to those living remotely or unable to leave their home.

Please click here for more information

The first Deloitte Access Economics Report on the Economic analysis of motor neurone disease (MND) in Australia reveals that the total cost of MND in Australia was $2.37 billion in 2015, comprising $430.9 million in economic costs and $1.94 billion in burden of disease costs. The report, commissioned by MND Australia, will be launched at Parliament House, Canberra on 24 February 2016.

 

Cost of MND Infographic

A collaborative agreement between MND Tasmania and the Cure MND Foundation ‘Fight MND’ will significantly improve access to essential communication equipment for members.  ‘Fight MND’ has donated $50,000 for the purchase of a range of Assistive Technology equipment for communication assessment, trial and loan.  The Independent Living Centre Tasmania (ILC Tas) will administer this service.  Members may be referred to the ILC team by their Speech Pathologist.  If you need to know more contact Hayley Tristram our MND Advisor. There will be progress updates as the scheme is rolled out.  Thank you to ‘Fight MND’ and all the hard-working donors in Tasmania who have enabled this new service, with a special mention to the 2016 Tassie Freeze MND Ball committee.

The US Food and Drugs Administration (FDA) has approved the drug edaravone for the treatment of MND. MND Australia has prepared a fact sheet to explain what this approval means for people living with MND in Australia.

You can download the fact sheet here

 

 

The Kirk Dicker Challenge is on the 13th and 14th of March 2016.  The event is a crazy craft ocean race and swim organised by the Boat Harbour Beach Surf Life Saving Club to raise money for support and research into MND. Click the image below for details.

Kirk Dicker Challenge 2016

The first Deloitte Access Economics Report on the Economic analysis of motor neurone disease (MND) in Australia reveals that the total cost of MND in Australia was $2.37 billion in 2015, comprising $430.9 million in economic costs and $1.94 billion in burden of disease costs. The report, commissioned by MND Australia, was launched at Parliament House, Canberra on 24 February 2016.

 

Cost of MND Infographic

MND Australia research updates can be downloaded below:

December 2015

September 2015

December 2014

June 2014

December 2013

May 2013

March 2013

June 2012

March 2012

 

The MND Research Institute of Australia (MNDRIA) newsletter Advance can be downloaded below:

June 2014