MND Australia produces two newsletters (Advance and MND Australia International Research Update) to keep readers up-to-date with the latest research in Australia and abroad. Check out the MND Australia 'Current Research' page where you can subscribe to receive newsletter and updates by email. Or please see the below information on recent 'Advance' and 'MND Australia International Research Update' newsletters.

Advance

Find out about new projects and the progress of research funded by MND Research Institute of Australia (MNDRIA)

Advance - June 2019

Advance - December 2018

Advance - June 2018

Advance - December 2017

Please see MND Australia's 'Current Research' page for the all issues (back to June 2014) of the 'Advance' newsletters.

 

MND Australia International Research Update 

Read about the latest MND research across the globe:

MND Australia International Research Update March 2019

MND Australia International Research Update December 2018

MND Australia International Research Update September 2018

MND Australia International Research Update June 2018

MND Australia International Research Update March 2018

MND Australia International Research Update December 2017

Please see the MND Australia's 'Current Research' page for the all issues (back to June 2015) of the 'MND Australia International Research' newsletters.

The ice bucket challenge initiative has been immensely successful in raising awareness for motor neurone disease. This debilitating and fatal disease has no known cause or cure. Since the ice bucket challenge commenced more than 50,000 Australians have donated in excess of $2.3 million to motor neurone disease research or to provide practical support for the nearly 2000 people with motor neurone disease and their families across the country.

In Tasmania we have received $22,329 in donations from the many ice bucket challenges people have performed. MND Tasmania also received $20,000 from the national association MND Australia as part of their fundraising.

A heartfelt thank you to all those people that have been so generous in donating and participating in the ice bucket challenge.

The first Deloitte Access Economics Report on the Economic analysis of motor neurone disease (MND) in Australia reveals that the total cost of MND in Australia was $2.37 billion in 2015, comprising $430.9 million in economic costs and $1.94 billion in burden of disease costs. The report, commissioned by MND Australia, was launched at Parliament House, Canberra on 24 February 2016.

 

Cost of MND Infographic

MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state.  The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.

Please click here to read the full letter

 

 

 

The US Food and Drugs Administration (FDA) has approved the drug edaravone for the treatment of MND. MND Australia has prepared a fact sheet to explain what this approval means for people living with MND in Australia.

You can download the fact sheet here

 

 

The Kirk Dicker Challenge is on the 13th and 14th of March 2016.  The event is a crazy craft ocean race and swim organised by the Boat Harbour Beach Surf Life Saving Club to raise money for support and research into MND. Click the image below for details.

Kirk Dicker Challenge 2016

The full roll-out of the NDIS in Tasmania has been announced.  It will be an incremental roll-out staged over the next few years.  MND Tasmania continues to work with the NDIA to ensure the voice of those with MND in Tasmania is heard.

Please click here to read the full stakeholder letter received by MND Tasmania.

Betta Milk Health Achievement Award Semi-Finalist

 

We're proud to announce that MND Tasmania is a semi-finalist in the Betta Milk "Make it Betta" Health Achievement Award category of the Community Achievement Awards.

Lady Sallie Ferrall

 

People who have a long association with MND in Tasmania were saddened to hear of the death of the Patron of MND Tasmania, Lady Sallie Ferrall, on September 10. Lady Ferrall was an active Patron of the Association, hosting the memorable annual Christmas Parties in her gardens at Quamby and Elphin House until recent years.

Her proactive support for people living with MND in Tasmania started over 30 years ago when her first husband, John Barnett, had MND. She initiated informal meetings and networks which resulted in the first public meeting at her home at Quamby on October 15 1985 to consider the formation of a society for people with MND in Tasmania.

After the incorporation of The MND Association of Tasmania on December 9 1986, Sallie was the Fundraising and Publicity Officer on the 11 member Committee. Another memorable milestone occurred on March 17 1996 when one of Sallie and John's four sons, Guy, was elected President of The MND Association of Tasmania.

We are very thankful for Lady Ferrall and her vibrant personality, passion and drive which resulted in the birth, growth and development of an organisation to support people and their families living with MND in Tasmania. Our sympathy is with her sons and their families at this time.