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Your passion to make a difference in the world of Motor Neurone Disease (MND) is encouraging. We are grateful for your support and the board of MND Tasmania will accept any donation with gratitude.
MND Tasmania Notice of AGM 2018
When: 1 PM, Sunday 18 March 2018
Where: ILC Tasmania, 275 Wellington Street, South Launceston
(The centre has accessible facilities and parking)
Guest speaker: Karen Frost, Executive Officer of the ILC Tasmania, with a presentation on the MND Tas Equipment Library and the MND Tas/ILC Tas Agreement
You are warmly invited to join with MND Tasmania members and the Board for afternoon tea following the meeting.
Sean Dorney's journey with Motor Neurone Disease
Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.
He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.
MND research trials
The MND Australia website lists the current trials in which people who have MND may participate.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial. The most recent trial is testing a drug called Tecfidera. For information, visit:
http://www.mndaust.asn.au/
MND Research Priority Survey
Thank you to the 330 people who have already completed the Research Priorities Survey. We'd love to hear from more members of the MND community, particularly people living with MND.
MND Australia is in the process of reviewing its research strategy and would like to know what areas of MND research you think are important. Take part in the Research Priorities Survey and have your say. It should take about 10-12 minutes of your time, thank you!
Letter from Michael Ferguson MP, Minister for Health
MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state. The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.
Please click here to read the full letter
Mindfulness Programs
Mindfulness Programs Australasia are offering a range of new mindfulness programs throughout Tasmania until June 2018. The courses are accessible even to those living remotely or unable to leave their home.
Inspire Magazine MND Article
Pages 26-27 of the latest edition of Inspire Magazine feature research funded by the MND Research Institute of Australia. This is where MND Tasmania sends the funds raised by and donated to MND Tasmania supporters for research.
CareSearch Community and Health Consumer Survey
CareSearch provides online palliative care information and resources to health professionals and to patients, carers and families as providing information for the general community. We are currently inviting members of the public to complete an anonymous online survey. We would like to understand your views on death and dying and find out what you know about palliative care and the CareSearch website. We are also interested in how you find and use online health information. We hope that you will consider taking the survey. Further information on the survey can be found on the CareSearch website by clicking here
