Updated MND Australia's Position Statement 'on Aged Care and People with MND'

MND Australia believes:
- People diagnosed with MND must have access to a range of services to meet their disability
needs irrespective of where they live, their age or which sector funds the service
- Access to reasonable and necessary government funded disability supports based on the age
of a person when they acquire, or are diagnosed with, a disability is discriminatory and
contravenes article 19 of the United Nations Convention on the Rights of Persons with
Disabilities
- Investment in Home Care Packages to reduce waiting list for higher level care at home, as
recommended in the Royal Commission into Aged Care Quality and Safety Interim Report1,
will improve the lives of thousands of older people, reduce the need for residential aged care
and boost home care sector employment opportunities during a time of rising unemployment

Further details on the Updated MND Australia's Position Statement 'on Aged Care and People with MND' can be found here.

MND Australia has just updated the Riluzole fact sheet to address new research that has been recently released about the medication. The main updates are to the sections describing the evidence about Riluzole, including the new study, and the advice on survival.

New evidence suggests the medication probably prolongs average survival by 6 to 19 months.

Please see the MND Australia Update Fact Sheet - Riluzole for further information.

Motor neurone disease (MND) is the name given to a group of diseases in which motor neurones progressively die. Motor neurones are nerve cells that control the movement of voluntary muscles, that is, muscles that are under conscious control. These include all the muscles of the arms, legs, back and neck and of speech, swallowing and breathing.

Please see the April 2020 MND Australia Fact Sheet - Background information on MND 

For information on current fundraising events or information sessions please go to our facebook page

MND Australia have developed a 'Living with MND during the COVID-19 pandemic' fact sheet.

Please click here for the fact sheet.

COVID-19 Update

MND Australia have added some quick links to the latest updates on COVID-19. Please click here to find important information on COVID-19.

Please check out the recently updated MND Australia Fact Sheet - Planning ahead

UPDATE

Due to the impact that the Coronavirus (COVID-19) is having on the ability of health professionals to travel and attend events we have decided to postpone the Health Professionals Forum. We regret any inconvenience this may cause individuals, and will advise when the event has been rescheduled.
 
Until there's a cure, there's care 

10/03/2020 

We understand that many people living with MND and their carers, families and friends may be concerned about COVID-19 (coronavirus).

MND Australia have posted a brief information statement their website that has a link to Health Direct with some very measured information and relevant links.

https://www.mndaust.asn.au/News-and-media/COVID-19-and-MND.aspx