Take part in an international study seeking to find out if there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with a diagnosis of motor neurone disease.

To find out more - the link for the survey can be found here

Equipment to help at home

Please see attached flyer with details of the upcoming Expo hosted by the Rotary Club of Ulverstone West.

 

ILC Tas (Independent Living Centre, Tasmania)  will have an occupational therapist present with a display of assistive equipment that may help people who have difficulty with everyday household tasks.  Come along for a chat – ILC Tas look forward to seeing you there on the day!

 

Where: Gnomon Pavilion and River Room

               Wharf Precinct of Ulverstone

 

When:   Friday 19th October 2018

               10am - 3pm

 

 

 

People living with Motor Neurone Disease (MND), their friends and family, health and community care professionals, researchers as well as the broader MND community are invited to attend MND Connect 2018.

Join us for this interactive forum connecting people impacted by MND with Australia's leading MND researchers.

View program

WHEN?

Saturday 10th November, 10 am – 3 pm

3:00 pm Lab visits, Associate Professor Bradley Turner

WHERE?

Ian Potter Auditorium, Kenneth Myer Building,

The University of Melbourne

For further details and registration - please see 4th MND Connect

The second annual Walk to D'feet MND Tasmania will be held on Sunday 21st October 2018 at the Domain Athletics Centre in Hobart.

Walk a lap of the track or run the full 5km. Bring the family along, activities for the kids, raffle, bbq and more! Gates open at 9.30 for a 10am start.

All funds raised will stay in Tasmania to care and support those individuals and their families currently living with MND.

Register now

https://www.mycause.com.au/events/walktodfeetmndtasmania

#nevergiveup

Motor Neurone Disease Australia has launched a campaign to call on the Government to make access to support services fair for ALL people diagnosed with motor neurone disease (MND).

People diagnosed with MND aged 65 or over are being forced to rely on unsuitable Aged Care services for their care and support needs, despite the fact they have the same needs as a person diagnosed under the age of 65.

MND is not age related.....

For further information, visit 

http://seniorau.com.au/8118-aged-care-is-failing-people-with-motor-neurone-disease

Clinical trial information has been updated on the MND Australia website.

As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial.

Two phase 2 trials, TEALS (Tecfidera in amyotrophic lateral sclerosis) and FORTITUDE-ALS are now actively recruiting. People can contact their neurologist or MND Advisor to discuss.

Clinical trials for Triumeq and Cu(11) ATSM trials have now closed.

For further information, visit https://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials.aspx

Your passion to make a difference in the world of Motor Neurone Disease (MND) is encouraging.  We are grateful for your support and the board of MND Tasmania will accept any donation with gratitude.

Donate Now

 
By using the site below, each time you shop you help improve the life of someone living with MND.  Donate by shopping. It's that simple!
 
 

Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.

He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.

Please click here to go to the article on the ABC website