Equipment to help at home

ILC (Independent Living Centre, Tasmania) will be at Central Highlands Community Health Centre on Tuesday 4th June, 2019 - 11am to 12:30pm.

See a display of equipment and talk to an occupational therapist about, e.g.:

- Useful products to help you eat, drink and cook

- Items to make everyday activities at home easier

- Information about staying independent as you get older

An occupational therapist from ILC Tas will have a display of assistive equipment at a visit to the Central Highlands.

Where: Central Highlands Community Health Centre, 6896 Lyell Highway, Ouse

When: Tuesday 4th June, 2019

Time: 11am - 12:30pm

Please see the ILC TAS brochure for further details. 

 

 

MND Australia is seeking six commitments from candidates from all side of politics in the lead up to the 2019 Federal Election, to address the urgent need to improve the lives of people living with motor neurone disease.

The six commitments we are calling on candidates to pledge their support:

1. Improvements to aged and disability care

2. Timely access to a full range of assistive technology

3. Development of MND guidelines

4. No cost access to IVF and pre-implantation genetic diagnosis

5. Funding for specialist MND multidisciplinary clinics

6. Increased investment in research

Read the MND Australia 6 steps to improve the lives of people living with MND document

 

 

Tasmanian Government Electricity Concessions: Life Support, and Medical Cooling or Heating

Within Tasmania, the State Government offers the following electricity concession schemes for certain medical conditions:

a. The Life Support Concession; and

b. The Medical Cooling or Heating Concession

About the concessions

Both concessions provide a daily discount to eligible domestic electricity customers who use, or live with someone who:

• uses a life support system; or

• requires cooling or heating to manage a medical condition.

Important: Applicants for either scheme must apply annually, and a medical practitioner must certify the application.

Please see the factsheet or visit here for further details

If you are a person with disability or a carer, family member or someone with a demonstrated interest in disability issues, you are invited to express interest in becoming a member of the Premier's Disability Advisory Council (PDAC). Up to four positions will be available.

To ensure statewide representation, people from the North and North West are strongly encouraged to apply.  PDAC assists the Tasmanian Government to implement Accessible Island: Tasmania's Disability Framework for Action 2018-2021 and provides advice on whole-of-government policy and programs that impact on Tasmanians with disability.

The closing date for expressions of interest is 5:00pm, Friday 29 March 2019. More information and application packs are available from the Department of Communities Tasmania by emailing This email address is being protected from spambots. You need JavaScript enabled to view it. or by calling 03 6232 7183.

First Announcement - call for papers

30th International Symposium on ALS/MND

The Motor Neurone Disease Association is pleased to announce the first announcement and call for papers for the 30t International Symposium on ALS/MND that will be held in Perth, Australia on 4-6 December 2019.

Registrations will open in March 2019

Online submissions will open on 6 May 2019

Abstract submission deadline is 5 June 2019

For further details - please visit the Symposium website or see the 'First Announcement 2019'

Building a Consumers Health Voice in Tasmania - Read the latest e-update January 2019

The e-update January 2019 includes:

A call for action: Become a health consumer representative

Consumer Workshop: Collectively, we will put our minds together on Monday 18th February in Campbell Town to build and co-design the organisation and examine the refine core functions; engagement, and first-year priorities. To find out more and how to be involved, please see the following link.

Other News: Transvaginal mesh implants, My Health Record, Implementation Advisory Group

Access the latest e-update January 2019 here.

Associate Professor Peter Crouch talks about the results of the phase 1 clinical trial exploring copper-ATSM as a potential treatment for MND.

To read more - please use the following link to the MND Australia news page on 'Spot light on research: Update on copper-ATSM.

Use the following link to read other "MND stories - Spotlight on MND".

Facts and Figures 2017-18 - Infographic from MND Australia.

State MND Associations provide support and services to enable people impacted by motor by motor neurone disease to live better for longer.

Until there is a cure, there is care!

See below or follow the link for further information on facts and figures 2017-18.

State MND infographic 17-18

 

The Tasmanian Health Consumer Organisation is pleased to announce that work has commenced on building a new health consumer organisation for Tasmania.

The aim of this organisation is to create an independent health consumer voice in Tasmania.

The welcome to Tasmanian e-update - November 2018 - provides further details on:

1. Keeping you informed on what's happening as they build and co-design a health consumer organisation in Tasmania

- Introducing the new Executive Office: Bruce Levett

- Introducing the Implementation Advisory Group

2. Request for feedback and comments as they begin this journey

- What's next: Get involved by completing the Survey Monkey link (or emailing your preferences to the email contact) in the e-update.