Motor Neurone Disease Association of Tasmania (MNDTas) is a state-wide not for profit organisation governed by a volunteer Board. It does not receive assistance from the government and is funded entirely by the generosity of others.

The below chart indicates the origins of the income and highlights the vital role of fundraising within the Association.

Please see the link for a summary of our "Income" and "Operating Expenses" for Financial Year End 2018.

The annual Walk to D'feet MND Tasmania will be held on Sunday 20th October 2019 at the Domain Athletics Centre in Hobart

Walk a lap of the track or run the full 5km.

All funds raised will stay in Tasmania to care and support those individuals and their families currently living with MND.

When: Sunday 20th October 2019 with gates opening at 9:30am for a 10am start

Where: Domain Athletics Centre in Hobart

To register - Please use the 2019 Walk to D'feet MND Tasmania link.

We look forward to seeing you all again soon!

#nevergiveup

 

 

2019 Tasmania Palliative Care Conference

When: 14th and 15th November, 2019

Where: Wrest Point Convention Centre, Hobart

For further details: www.taspallcareconference.com.au

 

A new healthy ageing website has just been launched by the Tasmania Department of Health and Human Services (DHHS). It's full of useful information and resources to help those aged over 65 to stay well.

Take a moment to explore the website - you'll find nutrition and physical activity resources, recipes, video clips, links to free online training, key contacts and suggestions for support.

For more information, please email This email address is being protected from spambots. You need JavaScript enabled to view it.

The healthy ageing website includes information and links on ''Appetite for Life'. This is contains information developed for use by health and community workers who have direct contact with independent living older people (people over the age of 65). Please visit the 'Appetite for Life' website for further useful information.

Equipment to help at home

See a display of equipment and talk to an occupational therapist about, e.g. -

- useful products to help you eat, drink and cook

- items to make dressing easier

- products for recreation and leisure

 

Independent Living Centre (ILC) Tasmania will have an occupational therapist at:

The 2019 Disability Expo & Conference

Gearing Up for Choice & Conference

 

Where and when:

Hobart - Derwent Entertainment Centre - 29/8/19

601 Brooker Highway, Hobart - 11.00am - 5.30pm

 

Launceston: Launceston Convention Centre - 5/6/19

50 Glen Dhu Street, Launceston - 11.00am - 5.30pm

 

Devenonport: Paranaple Arts Centre - 18/9/19

137 Rooke Sreet, Devonport - 10.00am - 4.30pm

Please see the ILC brochure for further details. 

MND Australia is seeking six commitments from candidates from all side of politics in the lead up to the 2019 Federal Election, to address the urgent need to improve the lives of people living with motor neurone disease.

The six commitments we are calling on candidates to pledge their support:

1. Improvements to aged and disability care

2. Timely access to a full range of assistive technology

3. Development of MND guidelines

4. No cost access to IVF and pre-implantation genetic diagnosis

5. Funding for specialist MND multidisciplinary clinics

6. Increased investment in research

Read the MND Australia 6 steps to improve the lives of people living with MND document

 

 

Tasmanian Government Electricity Concessions: Life Support, and Medical Cooling or Heating

Within Tasmania, the State Government offers the following electricity concession schemes for certain medical conditions:

a. The Life Support Concession; and

b. The Medical Cooling or Heating Concession

About the concessions

Both concessions provide a daily discount to eligible domestic electricity customers who use, or live with someone who:

• uses a life support system; or

• requires cooling or heating to manage a medical condition.

Important: Applicants for either scheme must apply annually, and a medical practitioner must certify the application.

Please see the factsheet or visit here for further details

First Announcement - call for papers

30th International Symposium on ALS/MND

The Motor Neurone Disease Association is pleased to announce the first announcement and call for papers for the 30t International Symposium on ALS/MND that will be held in Perth, Australia on 4-6 December 2019.

Registrations will open in March 2019

Online submissions will open on 6 May 2019

Abstract submission deadline is 5 June 2019

For further details - please visit the Symposium website or see the 'First Announcement 2019'

Building a Consumers Health Voice in Tasmania - Read the latest e-update January 2019

The e-update January 2019 includes:

A call for action: Become a health consumer representative

Consumer Workshop: Collectively, we will put our minds together on Monday 18th February in Campbell Town to build and co-design the organisation and examine the refine core functions; engagement, and first-year priorities. To find out more and how to be involved, please see the following link.

Other News: Transvaginal mesh implants, My Health Record, Implementation Advisory Group

Access the latest e-update January 2019 here.