The Menzies Debate : The Stem Cell Revolution – more hype than hope?
A debate by six experts.
September 7 2016 5.30pm – 7pm at the Medical Science Precinct in Hobart.
ABC science communicator Bernie Hobbs will moderate what promises to be a stimulating and informative discussion on a topic with big implications for the treatment of many diseases including MND.
Register for this free event at www.menzies.utas.edu.au
MND Tasmania turns 30 on the 6th of December !
Save the date: A celebration to commemorate this anniversary is planned for Sunday 27 November in Launceston.
Look out for notices in the next newsletter and on our website.
Would you or someone you know consider volunteering for one of the following roles?
Northern Support Group coordinator
We are looking for a volunteer who will take on this role for the rest of this year. It involves setting the dates for and attending Support Group meetings, booking the venue and liaising with the people who attend regularly to provide a welcoming environment for people who come along. Mary Erickson and other Board members will assist and support this person.
This person doesn't need to do any fundraising but their task is to assist people who wish to raise funds for MND. It involves providing information about MND and the Association, assisting with the supply of MND promotional merchandise, providing information about insurance cover and police permission for public events, and to represent MND Tasmania where necessary together with other Association members. Support and assistance will be given by the MND Tasmania Board and MND Victoria staff.
Support MND Tasmania and pre-order your 2016/2017 Entertainment™ books here!
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Click the image below to pre-order your 2016/2017 Entertainment Book.
ILC Tasmania is hosting an event showcasing equipment that can help people living with MND at home.
When: Thursday 14th July, drop in any time between 11:30 am and 1:00 pm
Where: The Montgomery Room Ulverstone
For further details please view the event flyer by clicking here.
In Tasmania the Better Access to Palliative Care (BAPC) project is working towards providing the best possible palliative care for people with life- limiting illness, including through developing a Tasmanian Palliative Care Community Charter. The Charter will be an agreement between Tasmanian palliative care service providers and the people of Tasmania about the way in which palliative care is provided in the community.
To ensure that the Charter reflects the views of community members, we are conducting a survey and we would greatly appreciate your input to that. To complete the survey, please click here
The first Deloitte Access Economics Report on the Economic analysis of motor neurone disease (MND) in Australia reveals that the total cost of MND in Australia was $2.37 billion in 2015, comprising $430.9 million in economic costs and $1.94 billion in burden of disease costs. The report, commissioned by MND Australia, was launched at Parliament House, Canberra on 24 February 2016.
Northern Support Group
The Northern Support Group invites all members and supporters of MND Tasmania to its meetings. The Ravenswood facility is comfortable and suitable to use as a stopover venue for a day trip.
WHEN: Meetings are held on Mondays at 11am – 1pm.
Meeting dates 2016: June 27, July 25, September 25, November 27 (SUNDAY Christmas party & MND Tasmania anniversary).
Note - no meeting in August and October.
WHERE: The Ravenswood Community Health Centre, 39 – 41 Lambert St., Ravenswood (excellent accessible comfortable facilities and parking).
The contact person for this group is Libby Cohen who may be contacted at 1800 806 63 (message).
Southern Support Group
No Southern Support Group meetings are scheduled until further notice. Please note that members from any part of the State are welcome to attend the Northern Support Group meetings in Launceston.