Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.

He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.

Please click here to go to the article on the ABC website

Clinical trial information has been updated on the MND Australia website.

As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial.

Two phase 2 trials, TEALS (Tecfidera in amyotrophic lateral sclerosis) and FORTITUDE-ALS are now actively recruiting. People can contact their neurologist or MND Advisor to discuss.

Clinical trials for Triumeq and Cu(11) ATSM trials have now closed.

For further information, visit https://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials.aspx

Motor Neurone Disease Australia has launched a campaign to call on the Government to make access to support services fair for ALL people diagnosed with motor neurone disease (MND).

People diagnosed with MND aged 65 or over are being forced to rely on unsuitable Aged Care services for their care and support needs, despite the fact they have the same needs as a person diagnosed under the age of 65.

MND is not age related.....

For further information, visit 

http://seniorau.com.au/8118-aged-care-is-failing-people-with-motor-neurone-disease

Pages 26-27 of the latest edition of Inspire Magazine feature research funded by the MND Research Institute of Australia.  This is where MND Tasmania sends the funds raised by and donated to MND Tasmania supporters for research.

Please click here view the magazine online

The Examiner has published an article about the inequities of neurological services across Tasmania.  MND Tasmania has been part of the Neurological Alliance of Tasmania (NAT) since its inception in 2006. Since that time, we have been lobbying for improved neurological services for people with neurological conditions including MND in the State.

Click here to read the article

Senator Carol Brown has been working with Carol Birks of MND Australia to ensure that MND Cornflowers will be prominent in the Senate on MND Global Awareness Day, the 21st of June.
 
MND Tasmania supports people living with MND, their families, friends and health workers. There are on average 35-40 people in our Association who have MND at any time and in Tasmania there are on average 10 new diagnoses of MND and 10 deaths due to MND every year. 
 
We are an Association of volunteers which is supported by donations and an MOU with MND Victoria to provide this support. Senator Brown's Cornflower action in the Senate will assist in raising the awareness of the needs of those living with MND.
 
Senator Brown, on behalf of the people who live with MND in Tasmania, we would like to thank you for the support!
 
 
 
 

ABC Radio recently interviewed Tracey Dickson from the Menzies Institute for Medical Research.

Please click here to listen to the interview

The Advocate newspaper recently published an article on the support group in the North West which you can access here

 

You can access the support group's Facebook page here

A Legana man has authored an anthology of stories which will support a cause that is close to his heart. David Brelsford was impacted by motor neurone disease when a friend died from the disease 16 years ago. David's book Crossroads can be purchased at Petrarch's Bookshop, located at 89 Brisbane Street Launceston, for $16.95. 

 

Click here to read the full news article on the Examiner website