A collaborative agreement between MND Tasmania and the Cure MND Foundation ‘Fight MND’ will significantly improve access to essential communication equipment for members.  ‘Fight MND’ has donated $50,000 for the purchase of a range of Assistive Technology equipment for communication assessment, trial and loan.  The Independent Living Centre Tasmania (ILC Tas) will administer this service.  Members may be referred to the ILC team by their Speech Pathologist.  If you need to know more contact Hayley Tristram our MND Advisor. There will be progress updates as the scheme is rolled out.  Thank you to ‘Fight MND’ and all the hard-working donors in Tasmania who have enabled this new service, with a special mention to the 2016 Tassie Freeze MND Ball committee.

The Examiner has published an article about the inequities of neurological services across Tasmania.  MND Tasmania has been part of the Neurological Alliance of Tasmania (NAT) since its inception in 2006. Since that time, we have been lobbying for improved neurological services for people with neurological conditions including MND in the State.

Click here to read the article

The MND Research Blog have posted an update on where things are at with Edaravone in Australia

Click here to read the article

There is also an updated FAQ sheet available from MND Australia below

Edaravone June 2017

A Legana man has authored an anthology of stories which will support a cause that is close to his heart. David Brelsford was impacted by motor neurone disease when a friend died from the disease 16 years ago. David's book Crossroads can be purchased at Petrarch's Bookshop, located at 89 Brisbane Street Launceston, for $16.95. 

 

Click here to read the full news article on the Examiner website

 

 

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