Thank you to the 330 people who have already completed the Research Priorities Survey. We'd love to hear from more members of the MND community, particularly people living with MND.

MND Australia is in the process of reviewing its research strategy and would like to know what areas of MND research you think are important. Take part in the Research Priorities Survey and have your say. It should take about 10-12 minutes of your time, thank you!

Please go here to complete the survey

MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state.  The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.

Please click here to read the full letter

 

 

 

Pages 26-27 of the latest edition of Inspire Magazine feature research funded by the MND Research Institute of Australia.  This is where MND Tasmania sends the funds raised by and donated to MND Tasmania supporters for research.

Please click here view the magazine online

CareSearch provides online palliative care information and resources to health professionals and to patients, carers and families as providing information for the general community. We are currently inviting members of the public to complete an anonymous online survey. We would like to understand your views on death and dying and find out what you know about palliative care and the CareSearch website. We are also interested in how you find and use online health information. We hope that you will consider taking the survey. Further information on the survey can be found on the CareSearch website by clicking here

A collaborative agreement between MND Tasmania and the Cure MND Foundation ‘Fight MND’ will significantly improve access to essential communication equipment for members.  ‘Fight MND’ has donated $50,000 for the purchase of a range of Assistive Technology equipment for communication assessment, trial and loan.  The Independent Living Centre Tasmania (ILC Tas) will administer this service.  Members may be referred to the ILC team by their Speech Pathologist.  If you need to know more contact Hayley Tristram our MND Advisor. There will be progress updates as the scheme is rolled out.  Thank you to ‘Fight MND’ and all the hard-working donors in Tasmania who have enabled this new service, with a special mention to the 2016 Tassie Freeze MND Ball committee.

The Examiner has published an article about the inequities of neurological services across Tasmania.  MND Tasmania has been part of the Neurological Alliance of Tasmania (NAT) since its inception in 2006. Since that time, we have been lobbying for improved neurological services for people with neurological conditions including MND in the State.

Click here to read the article

The MND Research Blog have posted an update on where things are at with Edaravone in Australia

Click here to read the article

There is also an updated FAQ sheet available from MND Australia below

Edaravone June 2017

A Legana man has authored an anthology of stories which will support a cause that is close to his heart. David Brelsford was impacted by motor neurone disease when a friend died from the disease 16 years ago. David's book Crossroads can be purchased at Petrarch's Bookshop, located at 89 Brisbane Street Launceston, for $16.95. 

 

Click here to read the full news article on the Examiner website

 

 

Support MND Tasmania and pre-order your 2017/2018 Entertainment™ books here!

Entertainment™ Memberships are packed with hundreds of up to 50% off and 2-for-1 offers for the best local restaurants, cafés, attractions, hotel accommodation, travel and much more!

Available as a traditional Entertainment™ Book OR the new Entertainment™ Digital Membership (more info here) for your Apple or Android device, your Membership gives you over $20,000 worth of valuable offers valid through to 1 June 2018!

Click the image below to pre-order your 2017/2018 Entertainment Book.

Click to pre-order your 2016/2017 entertainment book