When Chris Symonds was diagnosed with a rare Motor Neurone Disease (Kennedy's Disease) he thought he’d never sail again. Instead his local yacht club started a Sailability program and now he’s winning international competitions.

Check out Chris's amazing story on ABC TV on Monday 6th January 2020.

OR please see the ABC interview with Chris on the ABC Facebook video page.

The MND Research Institute of Australia has announced close to $3 million in MND research grants to help bring us closer to a world with out MND.

A total of 23 grants were awarded for projects starting in January 2020, including the $250,000 Betty Laidlaw MND Research Prize, won by Dr Shyuan Ngo from the University of Queensland.

For further details please visit the Current research news at MND Australia.

MNDRIA is indebted to the generosity of donors and the State MND Associations who fund this research!

 

 

Motor Neurone Disease Association of Tasmania (MNDTas) is a state-wide not for profit organisation governed by a volunteer Board. It does not receive assistance from the government and is funded entirely by the generosity of others.

The below chart indicates the origins of the income and highlights the vital role of fundraising within the Association.

Please see the link for a summary of our "Income" and "Operating Expenses" for Financial Year End 2018.

A new healthy ageing website has just been launched by the Tasmania Department of Health and Human Services (DHHS). It's full of useful information and resources to help those aged over 65 to stay well.

Take a moment to explore the website - you'll find nutrition and physical activity resources, recipes, video clips, links to free online training, key contacts and suggestions for support.

For more information, please email This email address is being protected from spambots. You need JavaScript enabled to view it.

The healthy ageing website includes information and links on ''Appetite for Life'. This is contains information developed for use by health and community workers who have direct contact with independent living older people (people over the age of 65). Please visit the 'Appetite for Life' website for further useful information.

Tasmanian Government Electricity Concessions: Life Support, and Medical Cooling or Heating

Within Tasmania, the State Government offers the following electricity concession schemes for certain medical conditions:

a. The Life Support Concession; and

b. The Medical Cooling or Heating Concession

About the concessions

Both concessions provide a daily discount to eligible domestic electricity customers who use, or live with someone who:

• uses a life support system; or

• requires cooling or heating to manage a medical condition.

Important: Applicants for either scheme must apply annually, and a medical practitioner must certify the application.

Please see the factsheet or visit here for further details

First Announcement - call for papers

30th International Symposium on ALS/MND

The Motor Neurone Disease Association is pleased to announce the first announcement and call for papers for the 30t International Symposium on ALS/MND that will be held in Perth, Australia on 4-6 December 2019.

Registrations will open in March 2019

Online submissions will open on 6 May 2019

Abstract submission deadline is 5 June 2019

For further details - please visit the Symposium website or see the 'First Announcement 2019'

Associate Professor Peter Crouch talks about the results of the phase 1 clinical trial exploring copper-ATSM as a potential treatment for MND.

To read more - please use the following link to the MND Australia news page on 'Spot light on research: Update on copper-ATSM.

Use the following link to read other "MND stories - Spotlight on MND".

Facts and Figures 2017-18 - Infographic from MND Australia.

State MND Associations provide support and services to enable people impacted by motor by motor neurone disease to live better for longer.

Until there is a cure, there is care!

See below or follow the link for further information on facts and figures 2017-18.

State MND infographic 17-18

 

The Tasmanian Health Consumer Organisation is pleased to announce that work has commenced on building a new health consumer organisation for Tasmania.

The aim of this organisation is to create an independent health consumer voice in Tasmania.

The welcome to Tasmanian e-update - November 2018 - provides further details on:

1. Keeping you informed on what's happening as they build and co-design a health consumer organisation in Tasmania

- Introducing the new Executive Office: Bruce Levett

- Introducing the Implementation Advisory Group

2. Request for feedback and comments as they begin this journey

- What's next: Get involved by completing the Survey Monkey link (or emailing your preferences to the email contact) in the e-update.