MND research trials
The MND Australia website lists the current trials in which people who have MND may participate.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial. The most recent trial is testing a drug called Tecfidera. For information, visit:
http://www.mndaust.asn.au/
Letter from Michael Ferguson MP, Minister for Health
MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state. The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.
Please click here to read the full letter
Inspire Magazine MND Article
Pages 26-27 of the latest edition of Inspire Magazine feature research funded by the MND Research Institute of Australia. This is where MND Tasmania sends the funds raised by and donated to MND Tasmania supporters for research.
Communication equipment
A collaborative agreement between MND Tasmania and the Cure MND Foundation ‘Fight MND’ will significantly improve access to essential communication equipment for members. ‘Fight MND’ has donated $50,000 for the purchase of a range of Assistive Technology equipment for communication assessment, trial and loan. The Independent Living Centre Tasmania (ILC Tas) will administer this service. Members may be referred to the ILC team by their Speech Pathologist. If you need to know more contact Hayley Tristram our MND Advisor. There will be progress updates as the scheme is rolled out. Thank you to ‘Fight MND’ and all the hard-working donors in Tasmania who have enabled this new service, with a special mention to the 2016 Tassie Freeze MND Ball committee.
Neurology service inequities hit a nerve
The Examiner has published an article about the inequities of neurological services across Tasmania. MND Tasmania has been part of the Neurological Alliance of Tasmania (NAT) since its inception in 2006. Since that time, we have been lobbying for improved neurological services for people with neurological conditions including MND in the State.
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