Motor Neurone Disease Australia has launched a campaign to call on the Government to make access to support services fair for ALL people diagnosed with motor neurone disease (MND).

People diagnosed with MND aged 65 or over are being forced to rely on unsuitable Aged Care services for their care and support needs, despite the fact they have the same needs as a person diagnosed under the age of 65.

MND is not age related.....

For further information, visit 

http://seniorau.com.au/8118-aged-care-is-failing-people-with-motor-neurone-disease

Clinical trial information has been updated on the MND Australia website.

As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial.

Two phase 2 trials, TEALS (Tecfidera in amyotrophic lateral sclerosis) and FORTITUDE-ALS are now actively recruiting. People can contact their neurologist or MND Advisor to discuss.

Clinical trials for Triumeq and Cu(11) ATSM trials have now closed.

For further information, visit https://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials.aspx

Your passion to make a difference in the world of Motor Neurone Disease (MND) is encouraging.  We are grateful for your support and the board of MND Tasmania will accept any donation with gratitude.

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Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.

He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.

Please click here to go to the article on the ABC website

The MND Australia website lists the current trials in which people who have MND may participate.

As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial. The most recent trial is testing a drug called Tecfidera. For information, visit:

http://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials/TEALS.aspx

MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state.  The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.

Please click here to read the full letter

 

 

 

Pages 26-27 of the latest edition of Inspire Magazine feature research funded by the MND Research Institute of Australia.  This is where MND Tasmania sends the funds raised by and donated to MND Tasmania supporters for research.

Please click here view the magazine online

A collaborative agreement between MND Tasmania and the Cure MND Foundation ‘Fight MND’ will significantly improve access to essential communication equipment for members.  ‘Fight MND’ has donated $50,000 for the purchase of a range of Assistive Technology equipment for communication assessment, trial and loan.  The Independent Living Centre Tasmania (ILC Tas) will administer this service.  Members may be referred to the ILC team by their Speech Pathologist.  If you need to know more contact Hayley Tristram our MND Advisor. There will be progress updates as the scheme is rolled out.  Thank you to ‘Fight MND’ and all the hard-working donors in Tasmania who have enabled this new service, with a special mention to the 2016 Tassie Freeze MND Ball committee.