30th International Symposium on ALS/MND - Perth - December 2019
First Announcement - call for papers
30th International Symposium on ALS/MND
The Motor Neurone Disease Association is pleased to announce the first announcement and call for papers for the 30t International Symposium on ALS/MND that will be held in Perth, Australia on 4-6 December 2019.
Registrations will open in March 2019
Online submissions will open on 6 May 2019
Abstract submission deadline is 5 June 2019
For further details - please visit the Symposium website or see the 'First Announcement 2019'
Spotlight on research: Update on copper-ATSM
Associate Professor Peter Crouch talks about the results of the phase 1 clinical trial exploring copper-ATSM as a potential treatment for MND.
To read more - please use the following link to the MND Australia news page on 'Spot light on research: Update on copper-ATSM.
Use the following link to read other "MND stories - Spotlight on MND".
MND Australia infographic - facts and figures 2017-18
Facts and Figures 2017-18 - Infographic from MND Australia.
State MND Associations provide support and services to enable people impacted by motor by motor neurone disease to live better for longer.
Until there is a cure, there is care!
See below or follow the link for further information on facts and figures 2017-18.
Building a Consumers Health Voice in Tasmania
The Tasmanian Health Consumer Organisation is pleased to announce that work has commenced on building a new health consumer organisation for Tasmania.
The aim of this organisation is to create an independent health consumer voice in Tasmania.
The welcome to Tasmanian e-update - November 2018 - provides further details on:
1. Keeping you informed on what's happening as they build and co-design a health consumer organisation in Tasmania
- Introducing the new Executive Office: Bruce Levett
- Introducing the Implementation Advisory Group
2. Request for feedback and comments as they begin this journey
- What's next: Get involved by completing the Survey Monkey link (or emailing your preferences to the email contact) in the e-update.
Does perceived stigma influence psychological distress in individuals with motor neurone disease?
Take part in an international study seeking to find out if there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with a diagnosis of motor neurone disease.
To find out more - the link for the survey can be found here
Aged Care is failing people with motor neurone disease
Motor Neurone Disease Australia has launched a campaign to call on the Government to make access to support services fair for ALL people diagnosed with motor neurone disease (MND).
People diagnosed with MND aged 65 or over are being forced to rely on unsuitable Aged Care services for their care and support needs, despite the fact they have the same needs as a person diagnosed under the age of 65.
MND is not age related.....
For further information, visit
http://seniorau.com.au/8118-aged-care-is-failing-people-with-motor-neurone-disease
MND Clinical Trial Update
Clinical trial information has been updated on the MND Australia website.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial.
Two phase 2 trials, TEALS (Tecfidera in amyotrophic lateral sclerosis) and FORTITUDE-ALS are now actively recruiting. People can contact their neurologist or MND Advisor to discuss.
Clinical trials for Triumeq and Cu(11) ATSM trials have now closed.
For further information, visit https://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials.aspx
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Sean Dorney's journey with Motor Neurone Disease
Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.
He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.
