ILC Tas at 2018 Disability Expos in Hobart, Burnie and Launceston
ILC Tas (Independent Living Centre, Tasmania) at Disability Expos in Hobart (30/08/18), Burnie (06/09/18) and Launceston (13/09/18).
The Disability Expos connects people living with disability, their families, and carers with local products, services and service providers.
For further details on ILC Tas at the Disability Expos - Please see the below link for further details and specific locations for Hobart, Burnie and Launceston.
9th National MND Australia Conference – program and registration
9th National MND Australia Conference
The 9th National MND Australia conference organisers are please to announce that The Hon Stephen Wade MLC, Minister for Health and Wellbeing will be opening the conference on Friday 31 August, 2018.
The PROGRAM for the bienniel National MND Australia Conference is now available.
You are invited to register now for the 9th National MND Australia Conference, MND Care – Informing, Influencing, Innovating hosted by the MND Association of South Australia.
Join us to learn, share and increase understanding of MND to improve the care and support for people living with MND, their carers and families.
Date: Thursday 30 August, 2018 – Friday 31 August, 2018
Time:
Pre Conference Networking Event – Thursday 30 August 2018, 5 pm – 7 pm Conference Day – Friday 31 August 2018, 8.30 am – 5 pm
Venue: Grand Chancellor Hotel, Adelaide, South Australia
REGISTER NOW. You can register online here and please note that registration includes the pre-conference networking session.
There was a great response for the call for abstracts for the 9th National MND Conference 2018. With 12 platform and many more poster presentations the program covers a wide range of topics relevant to the care and support of people living with MND from diagnosis through to end of life.
Second annual Walk to D'feet MND Tasmania - Sunday 21st October 2018 at the Domain Athletics Centre in Hobart
The second annual Walk to D'feet MND Tasmania will be held on Sunday 21st October 2018 at the Domain Athletics Centre in Hobart.
Walk a lap of the track or run the full 5km. Bring the family along, activities for the kids, raffle, bbq and more! Gates open at 9.30 for a 10am start.
All funds raised will stay in Tasmania to care and support those individuals and their families currently living with MND.
Register now
https://www.mycause.com.au/events/walktodfeetmndtasmania
#nevergiveup
Aged Care is failing people with motor neurone disease
Motor Neurone Disease Australia has launched a campaign to call on the Government to make access to support services fair for ALL people diagnosed with motor neurone disease (MND).
People diagnosed with MND aged 65 or over are being forced to rely on unsuitable Aged Care services for their care and support needs, despite the fact they have the same needs as a person diagnosed under the age of 65.
MND is not age related.....
For further information, visit
http://seniorau.com.au/8118-aged-care-is-failing-people-with-motor-neurone-disease
MND Clinical Trial Update
Clinical trial information has been updated on the MND Australia website.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial.
Two phase 2 trials, TEALS (Tecfidera in amyotrophic lateral sclerosis) and FORTITUDE-ALS are now actively recruiting. People can contact their neurologist or MND Advisor to discuss.
Clinical trials for Triumeq and Cu(11) ATSM trials have now closed.
For further information, visit https://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials.aspx
Make a Donation
Your passion to make a difference in the world of Motor Neurone Disease (MND) is encouraging. We are grateful for your support and the board of MND Tasmania will accept any donation with gratitude.
Click. Shop. Donate.
Sean Dorney's journey with Motor Neurone Disease
Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.
He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.
MND research trials
The MND Australia website lists the current trials in which people who have MND may participate.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial. The most recent trial is testing a drug called Tecfidera. For information, visit:
http://www.mndaust.asn.au/
