Aged Care is failing people with motor neurone disease
Motor Neurone Disease Australia has launched a campaign to call on the Government to make access to support services fair for ALL people diagnosed with motor neurone disease (MND).
People diagnosed with MND aged 65 or over are being forced to rely on unsuitable Aged Care services for their care and support needs, despite the fact they have the same needs as a person diagnosed under the age of 65.
MND is not age related.....
For further information, visit
http://seniorau.com.au/8118-aged-care-is-failing-people-with-motor-neurone-disease
MND Clinical Trial Update
Clinical trial information has been updated on the MND Australia website.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial.
Two phase 2 trials, TEALS (Tecfidera in amyotrophic lateral sclerosis) and FORTITUDE-ALS are now actively recruiting. People can contact their neurologist or MND Advisor to discuss.
Clinical trials for Triumeq and Cu(11) ATSM trials have now closed.
For further information, visit https://www.mndaust.asn.au/Discover-our-research/Latest-research/Clinical-trials.aspx
Make a Donation
Your passion to make a difference in the world of Motor Neurone Disease (MND) is encouraging. We are grateful for your support and the board of MND Tasmania will accept any donation with gratitude.
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Sean Dorney's journey with Motor Neurone Disease
Sean Dorney left the ABC in 2014 after 40 years of award-winning reporting from the Pacific region.
He's facing a new challenge now — Sean has been recently diagnosed with Motor Neurone Disease.
MND research trials
The MND Australia website lists the current trials in which people who have MND may participate.
As the MND community in Australia is relatively small, participants may need to travel to interstate centres if they are eligible to participate in a trial. The most recent trial is testing a drug called Tecfidera. For information, visit:
http://www.mndaust.asn.au/
MND Research Priority Survey
Thank you to the 330 people who have already completed the Research Priorities Survey. We'd love to hear from more members of the MND community, particularly people living with MND.
MND Australia is in the process of reviewing its research strategy and would like to know what areas of MND research you think are important. Take part in the Research Priorities Survey and have your say. It should take about 10-12 minutes of your time, thank you!
Letter from Michael Ferguson MP, Minister for Health
MND Tasmania have received a response to our letter to the minister for health regarding neurology services in the north of the state. The good news is that the recruitment process to find 2 new neurologists for the Launceston General Hospital is underway.
Please click here to read the full letter
Inspire Magazine MND Article
Pages 26-27 of the latest edition of Inspire Magazine feature research funded by the MND Research Institute of Australia. This is where MND Tasmania sends the funds raised by and donated to MND Tasmania supporters for research.
